Tuesday, July 7, 2009
Ethan is having tummy time for the first time in 6 weeks. I was shocked that he liked it. Tummy time has never been frequent with him. Between two open heart surgeries, a G-tube, the trache (that I don't miss), and on and on, you can see why he hasn't had it much. We thought it would help move around the little bit of fluid left in his pleural spaces and get him off his sore back. You can see in the picture his thoracotomy scar for his surgery last week. The blue thing is a chest tube that was put in today to get a pocket of fluid that was on his right side.
Ethan had another CT scan of his lungs today. It helped them place the new chest tube and gave us another look at his lungs. We are still a bit concerned because his lungs don't look as full of air as they should. They look a bit "consolidated". He definately is still full of fluid and needs to be dried out a little more. Hopefully that will help his lungs out too. They talk about weaning the vent again tomorrow. We'll see. Maybe they will decided to dry him out a little more before they try again.
Today little Miss Bela stopped by. She has HLHS and spent 6 of her first 7 months of life on this heart unit. She is now 16 months old, walking, and cute as a button. It rejuvinated me to see her and think that Ethan will hopefully have a LIFE outside this unit (No offense to the staff. They are our family here. But it would be nice to be home!)
Also I wanted to give a shout out to themeanestmom.blogspot.com and babysafetravel.com. They gave Ethan a gift certificate towards a purchase from their baby boutique. That was very appreciated. I am amazed at all the the good works that are being done out there. We are truly blessed!