Ethan settled in for a couple hour nap for the first time in days! He was actually sound asleep/sedated for a few hours without jerking and waking throughout. The docs started an Epi drip on him last night when he was struggling. He got weaned off that today and tolerated it fine. His swelling is down a little today and his numbers/vital signs are the most stable they have been in days. I just pray it continues.
It was very hard today because the nurse and nurse practitiner both asked me not to touch, comfort, or talk/sing to Ethan. He has been so irritable lately. When I try to sooth him it almost becomes worse because he wants me so bad. He just stares at me and reaches for me. He wants to be held and comforted by mom so bad. . . and it can't happen yet. He has way too many "things" preventing him from being held. Such as a ventilator, 2 chest tubes, 2 central lines, an arterial line, and meds like dopamine and epinephrine! Just to mention a few. It has been over three weeks since Greg or I held him last. As a matter of fact his surgery was one month ago tomorrow. Like I said, a hard day. But I am grateful for friends checking on me and spending time with me. It helped pass the time.
They couldn't start feeds today because he was on the epinephrine. They just weaned it off and if he tolerates no epi during the night they will start feeds in the morning. His chest tube output for today is 60ish between both tubes! Yea! They just need to start feeding him and make sure the thoracic duct ligation worked before they pull them. The ligation cuts out the lymph vessel that is leaking fat and such into his pleural spaces. Also, his chest x-ray looked better today. Baby-steps. . . For now they are not going to do tPA again for his small blood clots. He is on heparin and they feel that is enough for now. Sorry for all the details. . . but trust me, I could go on for awhile longer if I really wanted!
I often say I know the Lord has a plan for Ethan, I just wish I had a crystal ball to see it. I am sure that is what many are feeling right now. There are MANY of you out there experiencing trials you wish you had a crystal ball for too. . . For now we will just try to ENJOY the journey.