Ethan is doing very well. Last night they had to lower his diuretics because he was peeing too much. They didn't want to bottom out his blood pressure or damage his kidneys. But he is still peeing well on his lower dose and has been very stable and comfortable. They even decided to do a sprint on the ventilator for 5 minutes this morning and he tolerated it well. They did one the other day and all heck broke loose in those 5 little minutes. As I mentioned a few posts ago, when he got the lung infection again they put his ventilator settings up really high.
So the weekend plan is for Ethan is to keep him peeing well, slowly lower his sedation some more, and try a few more ventilator sprints/lower settings. If all goes well the next few days, then we will work on trying to drastically lower his vent settings next week. As mentioned before, if it becomes apparent he is going to take a lot longer to get off the vent, then they are going to re-trache him. I already asked them to delay the trache to give a chance; I doubt they will let me push it off again. I humbly ask for you to pray for his lungs. The trache would not be permanent, but it would definately make life a lot harder when we are home. And its another surgery. . . But we will do whatever it takes to get him better!
Love and Thanks-
Heidi
2 comments:
I am SO glad Ethan's had a few good days... I really believe that it's a sign he's turning the corner. Pretty soon big things will start happening everyday and he'll be keeping you SO busy you'll hardly know you are there. Okay, maybe not... but it will get better and in a few months you'll be sitting at home with your entire family and you won't remember each of these days so well. We'll be there in a couple weeks and tell Ethan he better have that tube out and be working his way out the door! Thinking of you guys always and praying for a quick recovery and home SOON!!!!
Stacey
Good job little man!!! We will pray for DRY LUNGS!!!!!! Hope we see you soon. xoxo
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