I should not be posting right now because I am a stress case. It seems everytime you dig deeper to find an answer to a problem, you discover other problems. Ethan went to cath lab today. It was pretty successful, but didn't answer ALL the questions. Our cardiologists is always so good to take us back in the cath lab and show us all the films from the procedures.
First, there was a LARGE collateral vein. The doctor put in two coils to collapse it. Done deal (unless new collaterals grow). Collaterals are kind of like varicose veins off the heart. Ethan had this collateral before surgery, but it was tiny. The pressure changes from the new circulation made it grow 4 times larger. Second, they did an angioplasty (balloon) to his left pulmonary artery (PA). The PA had scar tissue narrowing and a kink where the sano shunt had been attached to it from the first surgery. The balloon opened the artery wider, but didn't totally get rid of the kink/angle. But it definately looked better. Hopefully we won't have to go in later for a stent. The third issue (and one currently stressing me out) is blood clots. He has one large and two small clots in major veins going into his glenn circulation. The doc was able to do a thrombectomy on the largest one, and it is GONE. He could not get the two smaller ones though. The positioning wasn't working. Saturday they suspected one small clot and started blood thinners. So Ethan will stay on the blood thinners until they (hopefully) go away.
Removal of the large clot, opening the PA, and closing off the collateral should help oxygen saturations, and may help a little with the effusions. But there was no smoking gun for the large increase in his effusions this past week. The things they found were definately issues that needed to be resolved. But they were not causing really high pressures like one might think. And really high pressures would be a cause for large effusions. So he will remain intubated for a day or two more until we decide if we need to go to surgery to try a procedure to resolve his effusion. UGH! I feel so bad for him. I just wish he could be a BABY!