I am not quite sure where to start. It has been an extremely rough 36 hours. Since I posted last, Ethan went downhill. I will give details, but I want to state first the he is stable now and his white blood cell count is going down! Thanks for the extra prayers.
The docs were working all day yesterday trying to find the source of infection. Ethan's left chest tube abruptly stopped draining yesterday morning and the site was looking red. They decided to pull it out. They knew it probably wasn't the main problem, but it was definately not looking good. His lung collapsed upon removal. He was already teetering on the verge of respiratory distress, but this made it official. He was intubated and his lung reflated. However, he was needing FULL ventilator support and his sats weren't good. The chest x-ray showed what was looking like pneumonia (most likely THE INFECTION).
So between pneumonia, pleural effusions, and being on the ventilator his lungs were having very high "resistence" or high pressures. And as previously mentioned, the new glenn circulation they created in surgery is based on low resistence in the lungs. Thus, his new circulation was not working. So after still having very low oxygenation after being intubated, they had to also put him on nitric gas. This helps lower the resistance in the lungs so blood can get in there to be oxygenated.
He finally stablized around 9pm. By 4am the party was over. He went downhill again. Ethan had low blood pressure during the night and they gave him fluids. And as Ethan always does, he soaked it up in his lungs
and his effusions got really bad. His oxygenation was in the 50's off and on all morning. And they couldn't get it up. He was not looking good. That is when I finally lost it! Greg came in and we were preparing for the worst.
The whole team went to work on him after they got him somewhat stable. They put in central and arterial lines again, ran lots of tests, started a whole lot of meds, and put in a chest tube. He is now very stable. They wanted to take him for a CT scan of his lungs, but that will wait til tomorrow. Right now they want to slowly wean him off the nitric and high ventilator settings They don't want to rock the boat any more today. Sorry for all the details, but I have had many texts requesting to know.
The most amazing thing happened though. They checked his arterial blood gases during all of this. This shows how his core system is doing. The docs expected it to be bad. . . and it was GOOD! His guardian angels were over him today!
Unfortunately, he looks like he just came out of surgery again. YUK!