Friday, June 5, 2009
One Word: Chylous!!!
These are the latest pictures of Ethan. . . The two are from pre-op before they wheeled him away. Love the arms blocking his face just as I said "smile". He is such a guy. The first one is right after surgery.
Ugh. . . They are back! At least they came early and were caught early. For those that don't remember, chylous is the fat his lymph system absorbs and then dumps into his pleural spaces. So we are onto the nasty, low fat formula again. So once again I am appreciating the G-tube. At least he doesn't have to drink it orally.
Unfortunately his right chest tube isn't draining well (did I mention I HATE chest tubes). Its a relationship of can't live with them, can't live without them (literally). They have tried repositioning him to get it to drain. We'll see if that works.
The docs don't want to extubate (take breathing tube out) until they get more fluid off his right pleural space. His oxygenation is struggling a bit and they think thats why. Hopefully we can get extubated tomorrow. Another we'll see!
On a very happy note an eccho was done today and Ethan's heart function looks really good. That is the most important thing right now. The effussions we can fix/control within a matter of time. Heart function. . .not such an easy fix. So for this news we are extremely grateful. His heart seems to have tolerated the transition to the Glenn circulation!