We are learning we are on the Lord's time and Ethan's time. After a few setbacks, today has been a quiet day with some baby steps in the right direction. We will take it! They had to put him back on one heart med that he had been off for a few days. But it is the smallest dose possible and it has made a huge difference. His blood pressure has been pretty stable since last night. He has had a few concerning moments which he resolved himself. The surgeon explained that a lot of babies who receive the "Sano shunt" on their heart struggle with fluid balance and blood pressure. That was reassuring to hear. I was starting to think it was an abnormal struggle we were having.
They have started the lasix again. This helps pull the extra fluid and swelling off his body. He needed lots of extra blood and fluid over the weekend. And to keep his pressures up they had to stop the lasix. So he now looks like the PILLSBURY DOUGH BOY! We thought we would snap a picture of him looking all chubby and compare it to what he looks like when his swelling is gone!
The other good news is they have lowered a lot of the ventilator settings. He is doing most of the breathing on his own. His chest is also clearing up. Another step in the right direction. He is also looking and moving around a little more. They had to keep him very sedated during the last couple of days. We pray for a continuation in the right direction. Patience has never been my strongest virtue! The Lord knows what I need to learn.
Much love and gratitude-