Monday, March 9, 2009

Quick Update

The ENT doc suprised us and came by last night. Unfortunately the trachea is in worse shape than we hoped. There is still a lot of swelling, so the docs put him on decadron (steroid) to bring down the inflammation. Then they will re-assess in a few days. But it appears that both vocal chords are paralyzed in a semi closed position. Thus his airway is too narrow for him to adaquetely breathe on his own. They keep telling us this is not a permanent problem, but it may take a few months to resolve. If it does not get better when the swelling goes down then Ethan may have to get a tracheostomy. They should be able to remove it by the second surgery though. It was not the news we wanted to hear, but we are grateful there are always 'options' whenever we have a problem. Modern medicine is amazing and our hearts are full of gratitude for how well Ethan is doing. His heart is functioning awsome and he melts are hearts everytime he grabs are fingers and looks us in the eyes. I even held him for over an hour today and he loved it (or at least he acted happy instead of crying non-stop). However he was back to Mr. Irritable by the afternoon :) Pray for the airway!
Love and thanks-
PS: Thanks to the cooks, play-date moms, and cleaning crew members who are getting our family through this time! My heart is more grateful than you can imagine.


Heidi Ann said...

I loved seeing you and your little man today. Why can't things be cut and dry, get a surgery and go home! THinking of you always!

The Simmons Family said...

We're praying that Ethan will prove the Dr.'s wrong and there will be no need for a trach. There will be many setbacks along the way, but canyou already feel the imense blessings???? Isn't it great!?


ZippityDoDaw said...

Praying for continued improvements. Hopefully there will be no need for a trach. What a blessing that his heart is happily beating along, doing it's work. I'm sure he loves everything about being touched and held by you. Over stimulation, and medications may be a factor from time to time, but never doubt. He craves and adores your every interaction! Love ya girl!