Ethan still looks great and his heart is working well. There is much to be grateful for. However, I don't see our hospital stay ending any time soon. After putting in the chest tube and switching to the "special" formula his output from his chest tube has kept going UP! And yes, that is not typical. If it continues to go up through Sunday then the next plan is to stop feeding him. They will restart the feeds through IV lines. This is not what we want to happen but we will do whatever it takes to get that little man better.
The special formula is a low fat formula (because the fluid going into his pleural space around his lungs is fats that are absorbed into the lymph system). So Ethan has also lost weight since he started that formula and is almost back to his birth weight they told me this afternoon. That is a major concern and they are currently trying to increase his calorie intake without adding fats. With his next surgery set to take place in 2 months, he needs to be growing and getting stronger during this period. It is our prayer that he will be able to overcome this chylous effusion in a timely manner. Our older children are constantly asking when we will bring Ethan home and all be together again. I hope soon!