We got an override from the boss (Beth thats you), and we are going home today (Saturday)! His xray looked the same and he is doing well. We are just waiting for his central line (IV) to be removed after he gets one last round of meds through it. I must say that we have had a few big accomplishments in this last hospital stay. He has grown well, is breathing better than ever, got his mickey button, and passed a swallow study. That means we can start giving him a bottle.
So far he does not like the bottle. He has sucked his pacifier great this whole time, but has NEVER had any feeds by mouth. He will suck the bottle but doesn't swallow until the formula builds up in the back of his throat. Once he realizes their is formula coming out he stops sucking and glares at me! It will take months to get him to take all his feeds by mouth. First he has to learn to swallow in a more coordinated manner, then he has to learn to enjoy it enough to want to take a large amount at a time. And as soon as we make some progress. . . it will be time for his next surgery and we will have to re introduce the bottle again! Such is life. It just does my heart good to see a bottle in his mouth :)
Thanks to ALL who continue to serve and pray for our family. This is not a short trial we are dealing with and we APPRECIATE the support!
Love-
Heidi
6 comments:
HORRAY for going home!! I am so excited to hear such great news. Hopefully you'll have him home for Mother's Day as well. We pray for you all the time. Hope to meet you soon.
Andrea
Yeah!!!!! I am so happy!!!
I'm so happy to hear about the progress he has been making and that you are going HOME!!! You have been through so much. I hope you can enjoy your time at home with that sweet boy.
WOW- what great news for all of you! That IS wonderful progress he is making! I knew he could do it! Keep up the good work. I am so happy for you.
Aunt Francie
Hey there-
I linked to your blog form Andreas... I always like to see "going home today" blogs!!
I am so happy you are going home, I cried the entire drive home after my daughter had her transplant- I couldn't be believe that we actually got to take her home- with a functioning heart.
We are STILL teaching her how to eat. I do have some advice about the eating thing if you want it.
Little Ethan is too stinkin cute!
Wow all kinds of progress! Awesome!
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