Ethan is doing well. . . but still in the hospital. His fever seems to have finally passed however, he continues to breathe quite fast, but that has always been his norm. We would be coming home soon but now there is a new concern. The Sano shunt he had placed on his heart during surgery is starting to narrow where it connects to the pulmonary arteries. It appears to be scar tissue build up. This shunt tends to do this and that risk was explained to us day of surgery. At that time it was the best choice to help preserve his pulmonary valve. Now that it is narrowing they are planning on doing an early Glenn (second heart surgery) in one month (about mid May).
Due to this the doctors/surgeons have decided to keep Ethan in the hospital until next week. They want to fine tune his medications and feedings to maximize his growth. They want him to gain at least two pounds in the next month. Hmmmmm. Its possible.
We are also praying his lungs will be ready enough in a month for this surgery. The lungs are most likely not going to have a low enough pressure needed for surgery,but with the help of modern medicine they should be able to get them close enough. So another big concern is that his lungs will be able to tolerate the procedure. I know this is too much info for most. . . but the bottom line is we would love continued prayers in Ethans behalf. Especially for growth and his lungs to be strengthened.
Love and Thanks-
Heidi
3 comments:
I will absolutely pray for Ethan and for his growth in preparation for the surgery. Our love to you and all your family, and sweet Ethan.
I will be thinking of you all and praying for Ethan. Your kids were so fun on Easter. I'm glad we got to spend some time with them!
UGH...I am frusterated for you. It sounds like what happen to Lily, but she has never had problems with her lungs, thank our Heavenly father for that. Sounds like Ethan and Lily have problems with their opposite valves, what a pair they make. We will continue to pray. As much as it is rotten being there..ok it not horrible, but home is a million times better. I wish you didn't have to be back there. I know how bitter sweet it is to be home, then no sooner do you get a routine in the making going, then does it get all messed up again because of a hospital trip.
I would love to come by and visit you and meet you in person. If you would like that is. Let me know when a good time would be. Next week would probably be best, as long as it works for you. I know how long the days can get in the hospital.
Sending you our heart hugs and love.
Prayers as always
The McLaughlin's
Jenna and Lilyana
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