We got an override from the boss (Beth thats you), and we are going home today (Saturday)! His xray looked the same and he is doing well. We are just waiting for his central line (IV) to be removed after he gets one last round of meds through it. I must say that we have had a few big accomplishments in this last hospital stay. He has grown well, is breathing better than ever, got his mickey button, and passed a swallow study. That means we can start giving him a bottle.
So far he does not like the bottle. He has sucked his pacifier great this whole time, but has NEVER had any feeds by mouth. He will suck the bottle but doesn't swallow until the formula builds up in the back of his throat. Once he realizes their is formula coming out he stops sucking and glares at me! It will take months to get him to take all his feeds by mouth. First he has to learn to swallow in a more coordinated manner, then he has to learn to enjoy it enough to want to take a large amount at a time. And as soon as we make some progress. . . it will be time for his next surgery and we will have to re introduce the bottle again! Such is life. It just does my heart good to see a bottle in his mouth :)
Thanks to ALL who continue to serve and pray for our family. This is not a short trial we are dealing with and we APPRECIATE the support!