Ethan is doing well. He has been fever free for almost two days now. They are still playing with his diuretic therapy (meds that make him rid excess fluid from his body - AKA pee). It is so funny. First he was putting on NO weight, now they are all in a tizzy because he is putting on TOO MUCH weight! And that is our life. Round and round we go, when it will stop nobody knows :)
The good news is that much of his weight gain is "real weight". They just think he retaining a little too much fluid. So Ethan should have the weight gain needed for the second surgery by next month. Their current theory is he is retaining fluid inside his lungs too, not just in his pleural spaces (wet lungs) and maybe that is why he breathes such short, rapid breathes. All I know is we don't want wet lungs going into surgery. . . so hopefully we get it balanced out soon so we can go home.
I have come to terms that it may be several months before we can live a somewhat "normal" life. That thought overwhelms me at times. . . but I know we can handle it because of all of you. The prayers and service are amazing and truly appreciated. Thank you ALL!
LOL-
Greg & Heidi
PS: Thanks Bri and girlies for the dinner and night out! It was much needed.
2 comments:
I hope they get the lungs and weight gain figured out too so you can wait it out the next month at home.. We'll be praying for those things. Hang in there! That's all you can do right? Praying for you too.. It does get back to "semi-normal", it just takes a little while at first. I think it's good you'll get the glenn out of the way quicker. They always feel better after the glenn..
Hang in there, I am sure they will get everything sorted out. Don't you love the balance of gain a lot of weight, no not too much weight...He's so little how is he supposed to know what they mean! :)
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