Just an update that all is well. He is still stable. Just when one test comes back a little out of line. . . the follow up one comes back more in line. He is a fighter. However don't unwrap him! He likes being wrapped liked a burrito. He gets an assessment every two hours by the nurse. As soon as one side gets unwrapped he is squawking at the nurse until he is wrapped up again. Same goes for mom and dad. He loves us to hold him and pat his head, but DO NOT unwrap him!
We gave Ethan and blessing last night. It was beautiful. Greg did a wonderful job. Thanks to all who came all the way out and participated. Missy, my sister showed up with a Texas Sheet Cake. Our families favorite! She said what is a blesssing without a Texas Sheet Cake. We all went to the family waiting area and ate it afterwards. . . good call Miss!
I went and slept with the kids last night. My first night away from the hospital. Although I missed Ethan, Greg got some one on one time with him. . . and I got some good sleep.
Thanks again for all your love and prayers.
Heidi
2 comments:
I'm so glad he is such a fighter! All those tests can drive you crazy! :) I"m glad you got some much needed sleep last night and I'm sure your kiddos loved having mommy home. The Blessing sounds like it was pretty special. I'm glad things went so well!
I came across your blog a few days ago and was going to comment as soon as I got a chance... small world! Ethan is adorable.. CoNGRATULATIONS!!
I can tell you that this journey is a tough one. You will shed many tears and spend sleepless nights in the hospital. IT IS SO WORTH IT... EVERY SECOND OF IT!! You won't believe the blessings that you will experience! I wouldn't trade it for anything.
Owen had always been a "fragile" Hypoplast. He's been on loads of meds and feeding tube. You would never know it by looking at him! His function is blah (blood just slops around), his tricuspid valve is mod-severely leaking and his pressures are high. There is no way that his little heart will tolerate any further surgeries. Transplant is our only option. I always thought it would come to this, but not so soon. His antibodies are extremely high due to donor tissue that was used during his Norwood (this is common).. so now we are doing chemo to try to decrease those antibodies. It makes it harder to find a donor whose heart he won't reject. We did everything at PCH and our cardiologist is Dr. Stock (AMAZING)!
I'll add you to our blogroll and say prayers for you all!! If you ever want to chat or VENT (you'll have many moments), I'm all ears!
Andrea
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